I spent time today talking with the Risk Manager at Dana-Farber, and then with the Patient and Family Services manager, and then with her and the leader of the IT group for new patient intake.
Turns out the form I was complaining about (ancient word document, formatted for completion on type-writer or by hand, no secure way to send it back, no way to capture its data digitally) is specific to the breast cancer group and maybe a few more. Nonetheless, THEY ARE GOING TO REVIEW THE FORM FOR TRANSFER INTO AN ON-LINE FORMAT and also review the question of how data gets back to them and into The System.
They listened to one patient, and are (possibly) changing the way every breast cancer patient who chooses Dana-Farber experiences the intake process.
I am hugely impressed, and so happy I could dance.
(They are still going to address the medication reconciliation issues. That's apparently a manual process, but once the data is in, it should show up everywhere. But I feel a certain level of trust now that they will track the issue I had to its source.)
Boobeucracy, I will beat you or change you!
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