It's pretty clear now that the third day after chemo is the one where everything crashes for me. It's the day that makes you realize you really have been poisoned. There's no way to "power through" the weariness, as I can do on most other days.
Thank goodness, the Wonder Family did our grocery shopping with impeccable attention to the list I sent them yesterday, when I still had a functional brain. The ice cream got into the freezer right away, but it took me several hours to get the rest of it stowed.
I filed a Patient Safety Incident on-line form with Dana-Farber, and a legal eagle friend in NYC has advised at least discussing this situation with a similar person up here. Just in case. Spouse and I are agreed that we certainly do not want money from them; we just want to know with quite a great deal of specificity how this problem will be corrected.
Actually, what I really want is to sit down with someone in their IT department and find out why they have a perfectly lovely on-line form for safety incidents and are still using a form they expect patients to print out and fill up by hand for new patient info. It makes no sense, no it doesn't.
I've always been particularly vexed when faxing was required for medical stuff. Faxing!
ReplyDeleteThe problem is that so many things require a "real" signature for release, and there seems to be no way to send a reliable e-signature that would stand up in court. So, faxing makes some sense. And it used to be that PCs had built in fax modems that used the same number as the dialup connection, so you could fax from the PC. Now, unles you want to pay for a hybrid printer with faxing/scanning features, you have to seek out a Staples or something.
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