Also known as New Year's Eve.
And this is just to reassure my friends and family that, while I didn't love every minute of 2011, it was by no means the worst year of my life. (That would have been 1985. Ask me about it sometime when you have a week or two.) For one thing, I found out all over again how many really nifty people care about me.
I do hope that we can all have a year without major health crises, and there are a few other things I'm hoping against hope for, such as decent restraint in the United States' electoral politics. But, all in all, I look forward to 2012 without conditions. After all, were it not for miracles of modern science, you wouldn't be reading this, because I'd have no idea yet that I had cancer at all. As it is, I am cancer free, and soon to be treatment free.
HUZZAH! And Happy New Year!
A blog specifically to communicate with friends, family, and other interested parties about me and my dealings with breast cancer.
Saturday, December 31, 2011
Friday, December 30, 2011
Countdown: Six!
The targeted treatment, or "boost" takes such a short time that positioning the Huge Device takes longer than the treatment. Also, I saw the nurse again today for a few moments, and though my radiation burns -- expecially the one under my arm -- look as though they wanted to grow their own mouths and eat my fingers, I am really doing fine. Things should be much better in a week.
Not much else to report, except that another day is knocked off the Radiation Calendar.
Oh, and the seed/flower catalogs have started to arrive! I am going to bring some in and leave them in the waiting area -- much more cheerful reading than another People or Real Simple magazine. (The latter is so thick with ads of things you can buy to simplify your life that it could serve as the dictionary illustration to define "oxymoron".)
Not much else to report, except that another day is knocked off the Radiation Calendar.
Oh, and the seed/flower catalogs have started to arrive! I am going to bring some in and leave them in the waiting area -- much more cheerful reading than another People or Real Simple magazine. (The latter is so thick with ads of things you can buy to simplify your life that it could serve as the dictionary illustration to define "oxymoron".)
Thursday, December 29, 2011
Countdown: Seven! -- Things I Wish They'd Told Me
(Please note the updated hair picture. I figured the Dome was worth documenting once.)
In more cheerful news, my husband and I met 21 years ago today! Which I guess is more of a "Today in History" entry than "News," but it still seems like news to us. :)
- The goop you have to slather on your breasts will play merry hell with your clothing. Wear your oldest, softest, saggiest undergarments, and be prepared to throw them away when it's all done.
- If the goop don't get your clothing, the B.O. will. Tom's of Maine unscented smells funny in its own right (hops and rosemary, rather like soup), and is remarkably ineffective.
- Don't go swimming. I didn't do this, but I had to figure out not to do it myself.
- When they say you will "get tired", they mean you will battle through waves of exhaustion. This is different from merely being sleepy. The waves can be battled through, though!
- Hot showers are a bad idea. Try lukewarm. I was told this eventually, after my skin was all broken down.
In more cheerful news, my husband and I met 21 years ago today! Which I guess is more of a "Today in History" entry than "News," but it still seems like news to us. :)
Wednesday, December 28, 2011
Countdown: Eight!
So, the word is that two weeks from today the area under my breast will be all healed up, and the area under my arm nearly so. Because we are not treating any of those spots any more. Further, we're not going to be treating the new spot long enough to cause any major skin breakdown. And I have enough goop to last through the end of treatment.
"The end of treatment." What a concept!
Today was not a wonderful day, but the lack of wonderfulness had nothing to do with the cancer. As most who know me know all too well, I am clumsy to the point of being a danger to myself and others. And today... well, let's just say that a sudden spurt in the fruit-fly population will come as no surprise, and I'm not sure the situation can be resolved. And all because when I drop things I'm trying to cook with they often bounce off my shoes.
As The Bravest Man Alive has cause to say far, far too often, it's a very good thing my parents didn't name me Grace.
Things I Wish They'd Told Me will be addressed tomorrow.
"The end of treatment." What a concept!
Today was not a wonderful day, but the lack of wonderfulness had nothing to do with the cancer. As most who know me know all too well, I am clumsy to the point of being a danger to myself and others. And today... well, let's just say that a sudden spurt in the fruit-fly population will come as no surprise, and I'm not sure the situation can be resolved. And all because when I drop things I'm trying to cook with they often bounce off my shoes.
As The Bravest Man Alive has cause to say far, far too often, it's a very good thing my parents didn't name me Grace.
Things I Wish They'd Told Me will be addressed tomorrow.
Tuesday, December 27, 2011
Countdown: 9!
I said this entry would be Things I Wish They'd Told Me, but that's going to have to be postponed for a day or two. Because other stuff happened today -- good stuff!
First, though, I am sorry to relate that the clinic where I'm being radiated changed my schedule and somehow didn't tell me. So the schedule I'd been handed said "3:10 PM", but they had me scheduled for 3:20. Which is fine. It just means I was never late. On the other hand, someone should have told me. And this is especially true because when I found out my schedule was changed and was given a new one, it had me all over the place for these last two weeks -- 3:20, 3:10, one day even at 3:00!
So, naturally, I asked what the [REDACTED] was going on and why I hadn't been told, and no one knew. No one knew who had changed the schedule, no one knew why I hadn't been asked if it was convenient or informed of the change, etc. (Don't worry, that [REDACTED] isn't covering up any profanity.)
So today I asked to speak with an administrator, and lo, the head of the clinic was covering phones (it being a holiday week) and she has promised to get to the bottom of things, not because anyone needs to be disciplined, but because communicating changes to people who are going through a lot already is one thing a clinic of this type should do exceedingly well.
AND THEN. After my treatment (which occurred on time), they took films of the new treatment positions! There will be three of them -- one to the left, one to the right, and one over my left shoulder. This "field" approach is necessary because the tumor was almost at my chest wall, and they need to radiate the site without blasting my heart. The aperture through which the radiation will pass is much, much smaller. HOORAY!
It's really going to end on time, folks.
First, though, I am sorry to relate that the clinic where I'm being radiated changed my schedule and somehow didn't tell me. So the schedule I'd been handed said "3:10 PM", but they had me scheduled for 3:20. Which is fine. It just means I was never late. On the other hand, someone should have told me. And this is especially true because when I found out my schedule was changed and was given a new one, it had me all over the place for these last two weeks -- 3:20, 3:10, one day even at 3:00!
So, naturally, I asked what the [REDACTED] was going on and why I hadn't been told, and no one knew. No one knew who had changed the schedule, no one knew why I hadn't been asked if it was convenient or informed of the change, etc. (Don't worry, that [REDACTED] isn't covering up any profanity.)
So today I asked to speak with an administrator, and lo, the head of the clinic was covering phones (it being a holiday week) and she has promised to get to the bottom of things, not because anyone needs to be disciplined, but because communicating changes to people who are going through a lot already is one thing a clinic of this type should do exceedingly well.
AND THEN. After my treatment (which occurred on time), they took films of the new treatment positions! There will be three of them -- one to the left, one to the right, and one over my left shoulder. This "field" approach is necessary because the tumor was almost at my chest wall, and they need to radiate the site without blasting my heart. The aperture through which the radiation will pass is much, much smaller. HOORAY!
It's really going to end on time, folks.
Monday, December 26, 2011
Countdown: 10!
After today (yesterday, as I write this), there are only nine treatments to go! Time to take stock of how I'm doing.
Countdown 9: More Stuff I Wish They'd Told Me
- The skin under the breast is tender, raw in places, and starting to itch. This is being eased, though not eliminated by wearing a thin, honeycomb gauze called Cuticerin, which I impregnate with a thinner version of Vaseline (called Aquaphor), and then cover, first with non-stick gauze pads, then with a large, thick pad, and then with a bra. It's rather messy and uncomfortable, but it does help.
- The skin under my arm is ready to secede from the Union, leave the planet, and join the Klingons. It's red, angry, sore, and getting worse by the minute, and there's very little to be done. Armpits naturally rub against stuff including the other side of themselves, and that's that. My various bulges and blobs don't help the situation. But people who have slender bodies and small breasts have their own issues with radiation, so I am not repining.
- The weariness is here, but I am dealing with it. Pushing through it as I can, and sleeping when I must. For example, on Christmas Eve I finished the last hat of my Great Hat Project (hats for all the Sunday School children, which is only eight, but the girl's hats were complicated), wrapped them all, went to church, made dinner, and then went over to my son's house to set up presents for the grandbaby. I was reeling with weariness through most of this, but it all got done.
- Hair is growing pretty fast now, and as far as I can tell is coming back exactly as it went. I can't tell if it is going to be more curly yet.
Countdown 9: More Stuff I Wish They'd Told Me
Thursday, December 22, 2011
Re-scanning
Today was quite a day.
First, the sales team on my current proposal decided we really couldn't bid on the contract as specified by the RFP. (Financial issues) Always a relief, even though this one was going fairly smoothly. I spent some time drafting a no-bid letter.
Then, out of the blue, the IT guy for my office calls -- I have to bring in my old laptop TODAY so he can pick it up tomorrow and get the data on it swapped to "my" new laptop, as the warranty on the old one has expired. So, schlep through the Route 1 traffic and back, because I also had to be at the radiology clinic early. Why?
RE-SCAN! This means I am nearly done with the whole-breast radiation and the physicists need to plan out the targeted therapy. I also saw the nurse and the doctor, picked up some different pads and bandages and goop for keeping the radiation burns to a minimum, and waited for more than an hour because the radiology team was backed up. Oh well, it just meant more knitting got done on my last hat.
The doctor and the nurse have no idea why I'm cold. The nurse suggests the anemia; the doctor, a hormonal imbalance. This actually makes some sense, as I was just starting the hormonal part of menopause when all this cancer business began. (Long story, but in essence I went through the physical part of menopause early due to a medical condition; but this left my ovaries intact and functioning, and they are just now starting to conk out.) And also, all my friends who told me they had cold issues are close to my age, or were when they had cancer. I will be asking the PCP about this.
And the cavity where the Lump was removed has really shrunk! The doctor is quite impressed with the surgeon's work. According to everyone, my skin looks "great -- considering..." which is the best it seems I can hope for.
This was a lot more driving than I have done recently, and through some difficult traffic, so I arrived home fairly beat. Fortunately, there's always pizza.
First, the sales team on my current proposal decided we really couldn't bid on the contract as specified by the RFP. (Financial issues) Always a relief, even though this one was going fairly smoothly. I spent some time drafting a no-bid letter.
Then, out of the blue, the IT guy for my office calls -- I have to bring in my old laptop TODAY so he can pick it up tomorrow and get the data on it swapped to "my" new laptop, as the warranty on the old one has expired. So, schlep through the Route 1 traffic and back, because I also had to be at the radiology clinic early. Why?
RE-SCAN! This means I am nearly done with the whole-breast radiation and the physicists need to plan out the targeted therapy. I also saw the nurse and the doctor, picked up some different pads and bandages and goop for keeping the radiation burns to a minimum, and waited for more than an hour because the radiology team was backed up. Oh well, it just meant more knitting got done on my last hat.
The doctor and the nurse have no idea why I'm cold. The nurse suggests the anemia; the doctor, a hormonal imbalance. This actually makes some sense, as I was just starting the hormonal part of menopause when all this cancer business began. (Long story, but in essence I went through the physical part of menopause early due to a medical condition; but this left my ovaries intact and functioning, and they are just now starting to conk out.) And also, all my friends who told me they had cold issues are close to my age, or were when they had cancer. I will be asking the PCP about this.
And the cavity where the Lump was removed has really shrunk! The doctor is quite impressed with the surgeon's work. According to everyone, my skin looks "great -- considering..." which is the best it seems I can hope for.
This was a lot more driving than I have done recently, and through some difficult traffic, so I arrived home fairly beat. Fortunately, there's always pizza.
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